Good Days…Bad Days With Maureen Pratt

Good Days…Bad Days With Maureen Pratt

Chronic Pain: Many ways to say, “Hallelujah!”

posted by mpratt
Image courtesy of Michael Elliott/FreeDigitalPhotos.net

Image courtesy of Michael Elliott/FreeDigitalPhotos.net

Sometimes, praising God is tough. Physical pain can make it impossible to lift a limb, let alone raise hands to heaven. Emotions might be anything other than joy-filled. And spirits can sag, especially as life with chronic pain goes on and on and on and on…

Today, I was preparing for the music we’re going to sing in church on Sunday, and was struck by how many different songs there are with “Hallelujah!” (or, “alleluia”) in the title. “Alleluia, Sing to Jesus,” “Alleluia! Sing!”, “Hallelujah!”, “Alle, Alle, Alleluia,” and so on. Songs that are fast, slow, high, low – lots of variety there, too. Yes, very, very different, but among them all is a common thread, praise for our God.

Finding your way to say, “Hallelujah!” in the midst of pain is difficult sometimes, but it’s important to remember that there are myriad ways of doing it. And, there is no, one “right” way. You can blink your approval of the beauty of God’s earth – that’s an “Hallelujah!” You can whisper “Thank you, Lord,” for even the smallest blessing during the day – that’s an “Hallelujah!” And, you can raise your head and shout, if the spirit moves you to do so. Yes, that’s an “Hallelujah!” too!

Giving praise to God is one of the crucial duties of we people of faith. Yes, our God is worthy of praise. And, it doesn’t matter how we do it – the joy of it is, we find a way, no matter what!

Blessings for the day,

Maureen

Living with chronic illness: How do you respond to the world?

posted by mpratt
Image courtesy of J Frasse/FreeDigitalPhotos.net

Image courtesy of J Frasse/FreeDigitalPhotos.net

No doubt about it, there are lots of problems in our world. Close to home and far away, the news of the day is full of strife, violence, awful issues, and injustices.

But even closer to home is your and my life with chronic illness, a war of its own, and, many times, full of trouble.

How much “news of the day” do we need to be aware of, given we’re already juggling serious issues of our own? And, if we do tune in to radio, television or print news, how do we respond to it? filter it? let is sink into our hearts and weigh us down more than we already are?

Enter the ostrich.

It would be tempting to do as these large, flightless birds do – that is, bury our heads, ears, and eyes in the sand of our closely-held lives. No stories of humans’ injustices to other humans, or of humans’ violence or neglect toward the world. Taking away the “noise” of discord might bring some peace to our troubled lives, or even comfort…And yet, I don’t think we can forever close out what’s going on beyond the walls of our heart and home.

Some news, after all, is instructional for us. We still need to be aware of the latest in healthcare and insurance issues, economic tips and trends. What goes on in our communities and neighborhoods does affect us, so it’s important to know at least the bare facts. And, even if we are confined to our homes and cannot move about in the world, we can hear of the needs present and lift them up in prayer.

What we do have to be mindful of, as we keep current, is how the news, especially the bad news, affects our hearts. We’re weighed down enough with health issues, we need to be aware of how we bring on extra stress and learn to keep it at bay.

I try to time my exposure to the hard news of the day, limiting my tv and radio time to certain programs or snippets of them.  As for “pop culture,” well, I limit my viewing and listening time there, too. Frivilous news can take a back seat to something more worthwhile or truly humorous. In conversations, if someone with whom I’m talking starts to get too negative or drone on about this or that world issue, I have no problem saying, “I’m not going to talk about this today,” or “Please, let’s talk about things other than the problems in our world.” Friends and family who care truly do understand.

We don’t have to be like the ostrich, but a little rebalancing of our exposure to news and other world issues can help us balance our need to know with our need for peace!

Blessings for the day,

Maureen

A Beautiful Flag Day to You!

posted by mpratt

American Flag by Michael ElliottI’m not much for awareness ribbons. There are so many of them, now, and of so many different colors, that I’m at sea as to which is which.

I am, however, very appreciative of the flag, particularly the flag of the United States of America.

Call me hokey, call me silly, call me a Midwesterner with deep roots in the U.S., I really like seeing the red, white, and blue fluttering in the breeze.  The sight reminds me of all the good that is in this country, and the heart that is at the very core of a giving, loving, diverse, and amazingly resilient people.

So, a beautiful Flag Day to you!

Long may she wave!

Blessings for the day,

Maureen

Lupus: One thing after another

posted by mpratt
Image courtesy of porbital/FreeDigitalPhotos.net

Image courtesy of porbital/FreeDigitalPhotos.net

It’s hard for many people to understand the “whack-a-mole”-like life that is life with lupus. There are some lupies among us with relatively mild disease and for whom some treatment provides longer-term relief. But there are some of us…Well, it’s another thing altogether.

Most recently for me, for example, the medication I took for years to “control” (I use that term loosely, because my lupus was far from controlled) lupus caused toxicity in my retinas. Off of that med I went, and onto another, which has not staved off lupus activity and, in fact, has stirred up yet more antibodies to yet another organ that had been, apparently, unaffected until now. Sigh. The situation is serious, and I have to go off the second med and onto a very powerful third one, with the anticipation of side effects and a curtailment of many activities.

And does all of this mean that my lupus will, once and for all, be quiet?

Oh, probably not.

Because, as I’ve said before, there is no cure for lupus and it can flare up anywhere in the body seemingly at any time.  Yes, we lupies are all different, with a different set of symptoms and disease course. But for me, it seems like lupus is just one thing after another…As long as the researchers still aren’t sure what causes lupus, I expect that potential cures are still a long while away.

For many reasons, I believe that faith is essential to coping with chronic pain and illness. But there’s nothing like the mysterious, unpredictable disease of lupus to make me know that faith is a must. I can’t control the disease. My doctors don’t have all the answers. Researchers are still…researching. The all-powerful one in this picture is God, and He is my rock of support and safety, not a rock to avoid!

I’ll have to be on the new med for at least a year. It’s going to be a whole new chapter in my fight. But, fight I will, and moreso.

We have to stay strong and stay faithful, my fellow lupies and all who have chronic health conditions. We cannot let “one thing after another” get us down!

Blessings for the day,

Maureen

 

 

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