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So, Memorial Day, I turned on my television intending to watch a bit of the Indianapolis 500 auto race. It was a spur-of-the-moment decision to revisit something I remember our family having to avoid when I was young; if we visited relatives in Illinois over the weekend of Memorial Day, we had to leave at…

Chronic illness and pain are serious business, and they take up a good deal of our time. Often, when someone asks what I do I say, “Well, managing my health is much like a full-time job.” It might not be what they want to hear, but it’s true (as you well know, too!). But we…

A woman asked if she could talk to me. I said, “Sure.” The conversation that transpired went something like this: Talk….talk….talk…. “For $500 and 4 weekends, you could cure your lupus yourself.” No…no…no! She was persistent, but I’d heard all of the arguments before. “Your doctor doesn’t know this…” “You’re doing the wrong things…” etc.…

If a flare or excessive pain makes it difficult to reach out to friends (or post on any of the social media sites), we can become distanced very quickly. Beyond the walls of our home, life goes on. And when we emerge from our flare, it might seem as if we’re getting to know our…
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