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Chronic illness and pain are serious business, and they take up a good deal of our time. Often, when someone asks what I do I say, “Well, managing my health is much like a full-time job.” It might not be what they want to hear, but it’s true (as you well know, too!). But we…

A woman asked if she could talk to me. I said, “Sure.” The conversation that transpired went something like this: Talk….talk….talk…. “For $500 and 4 weekends, you could cure your lupus yourself.” No…no…no! She was persistent, but I’d heard all of the arguments before. “Your doctor doesn’t know this…” “You’re doing the wrong things…” etc.…

Everybody’s happy! Everybody’s active! Everybody’s…NOT! When you don’t feel well, the struggle to make something, anything, good of a day can be exhausting and frustrating and, well, quite frankly, impossible. And yet, between those who say, “You have to have a positive attitude,” and those who declare, “It’s all in your mind,” you might feel…

The first book about chronic illness that I wrote, with rheumatologist David Hallegua, MD, was called “Taking Charge of Lupus: How to Manage the Disease and Make the Most of Your Life.” This was not the book’s original title; I’d titled it, “Lupus in Daily Life.” But, my very wise editor had a better idea,…
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