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With each age and stage of living with lupus, I find that there are periods when I have to go back to school. Not a formal sit-at-a-classroom-desk experience, but certainly one where I look at the latest information on studies, treatments, and the ever-evolving “why” of how we develop lupus in the first place. It’s…

Does your illness make you feel ugly? How about rethinking beauty? Months before I was diagnosed with lupus, I lost all of my hair. It was difficult to fully understand, yet each time I looked in the mirror, I could see the effects of something at work, changing my appearance and leading me into a completely…

A woman asked if she could talk to me. I said, “Sure.” The conversation that transpired went something like this: Talk….talk….talk…. “For $500 and 4 weekends, you could cure your lupus yourself.” No…no…no! She was persistent, but I’d heard all of the arguments before. “Your doctor doesn’t know this…” “You’re doing the wrong things…” etc.…

If a flare or excessive pain makes it difficult to reach out to friends (or post on any of the social media sites), we can become distanced very quickly. Beyond the walls of our home, life goes on. And when we emerge from our flare, it might seem as if we’re getting to know our…
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