Good Days…Bad Days With Maureen Pratt
Good Days...Bad Days With Maureen Pratt Archives

With each age and stage of living with lupus, I find that there are periods when I have to go back to school. Not a formal sit-at-a-classroom-desk experience, but certainly one where I look at the latest information on studies, […]

Does your illness make you feel ugly? How about rethinking beauty? Months before I was diagnosed with lupus, I lost all of my hair. It was difficult to fully understand, yet each time I looked in the mirror, I could […]

A woman asked if she could talk to me. I said, “Sure.” The conversation that transpired went something like this: Talk….talk….talk…. “For $500 and 4 weekends, you could cure your lupus yourself.” No…no…no! She was persistent, but I’d heard all […]

If a flare or excessive pain makes it difficult to reach out to friends (or post on any of the social media sites), we can become distanced very quickly. Beyond the walls of our home, life goes on. And when […]

Breast Cancer Awareness Month reminds me of a stinging experience I had a few years ago. I once approached someone who schedules a lecture series focused on coping with cancer about speaking in one of her programs. She explained that, […]

When I was first diagnosed with lupus, I asked my rheumatologist if she recommended I attend a patient support group. Her answer surprised me; she said ‘no,’ and explained that the experience might frighten me or make me depressed. Eventually, […]

I noticed that the cashier at a store where I shop was wearing a red dress ribbon, for heart health. I commented on it, and she said, “Oh, yes, we had a promotion for cancer awhile ago. I like the […]

Wait! Wait! I’ve got it…uh…it’s…I’ve got it…Oh, no I don’t! If you have an illness where there is a component of brain fog (as with lupus and many other autoimmune illnesses), you’ve probably had the experience of trying to remember […]

When I was first diagnosed with lupus, one of the things I learned was that the fatigue of a flare can be overwhelming. “Bone-numbing” is a description I’ve used a lot to try to help others understand how beyond-tired I […]

Toward the end of last year, I received an email from one of the patient advocacy groups I keep informed of. It said that a lupus drug had failed in trials and was being scrapped – but not to lose […]