2016-06-03
from

Hannah was born October 14, 1996, weighing six pounds two ounces. After two days in the hospital, she came home to the nursery that my husband, Pierce, and I had prepared for her at our house in Dallas.

Hannah was a good sleeper right from the start and took to nursing easily. But she didn't move around and kick like I'd seen other newborns do. At her two-week checkup, our pediatrician expressed concern about her muscle development. Then, a week later, Hannah was diagnosed with spinal muscular atrophy, an incurable genetic neuromuscular disease.

Pierce and I devoted ourselves to caring for her. We exercised her arms and legs, and took her on long walks to stimulate her senses. "What did we do before we had Hannah?" Pierce asked me one morning as she lay in bed between us. "I can't remember," I said, stroking her downy skin. We laughed as Hannah cooed and reached out to grab my finger.

We were encouraged when she still appeared healthy at three months. But as the neurologist expected, by the time she was five months she couldn't swallow or breathe on her own. She went on an oxygen machine, and we had to tube-feed her. Even smiling took more strength than she had to spare.

Hannah slept most of the time, with Pierce and me gazing down at her in bed, ready to comfort her if she seemed restless. The hospice nurses prepared us: Hannah was dying.

One night when she was seven months old, our daughter had an unusually difficult time breathing, waking every hour distressed. We were relieved when she finally fell into a calm sleep. "She looks so peaceful," I whispered. Pierce smoothed Hannah's dark hair, and joy fluttered within me to see her looking so beautiful, even if it was for the last time. Hannah died the next morning.

At the funeral I was amazingly composed, glad to talk to everyone who came. But when had I ever had trouble talking about our precious baby girl? Even now I found joy in telling stories about her.

Back at home Pierce and I stood in the empty foyer. There was nothing more to do. No more feedings, no medicines, no arrangements to be made. There was only silence, and time. Pierce put his arms around me. "Let's go for a drive," he said.

Somehow we wound up at a movie. We walked in and sat way in the back. I stared at the screen, the action passing before me like so many random colors and sounds. I haven't been to the movies since Hannah was born, I thought.

The sun was setting as we got into the car. When Pierce turned onto Greenville Avenue, I knew we were headed for Restland Cemetery, where Hannah was buried.

American flags dotted the graves and hung from the fence that bordered the cemetery. That's right, I remembered, it's Memorial Day weekend. In the past, that holiday had meant barbecues, swimming and laughing with friends and family in the hot sun. It meant summer was finally here. But how could I think about summer when it was still winter in my heart?

I'll never know joy again, I thought. I sat down beside Hannah's grave and started to cry. Pierce knelt next to me.

"Lucy, come back!" someone called. I lifted my head just in time to see what looked like an orange rocket coming at me. It was a dog! A short-haired orange dog, legs too short for her body, with pointed ears that stood straight up.

She launched herself at me and licked my face, wagging her tail so her whole body wiggled. Two young blond-haired boys stood near the fence calling, "Lucy! Lucy!" But she just danced around me, licking tears from my face and tripping over her feet. When I reached out to pet her, she kissed me smack on the lips.

"Yuck!" I exclaimed and wiped my mouth on my shirtsleeve. I tried to hold the excited dog at arm's length. Pierce tried to intervene, but she squirmed right out of his hands and got me square on the kisser again. I felt something inside me loosen, and I started to laugh.

"Lucy, leave those people alone!" the boys called. Lucy rolled over for a tummy scratch. Pierce obliged. Her tail waved back and forth, flattening the grass.

"She's not bothering us," I called back. Lucy licked me on the nose and then dashed back to the boys, who joined their family at another grave. A baseball pennant flapped on the fence near them, and I watched Lucy try to catch it. On the way home I shook my head over that spunky little dog. Well, she made me laugh, I thought. I'll give her that.

The respite from my grief didn't last. Without Hannah, I opened my eyes in the mornings aching for some reason to get up. Everyday errands seemed pointless. I moved through the hours on automatic pilot, numb and without any enthusiasm.

One day I was going over a list of recommended books on grief, and one in particular caught my eye. It was written by a counselor I'd met through the hospice chaplain. Reading her book, I could see she truly understood what I was going through. Still, Hannah had been dead only six weeks, and I couldn't bear to think of the lifetime without her that lay ahead.

"Maybe I need to join a support group," I said to Pierce one night. He encouraged me to give it a try. "For me, talking to you is enough, Stephanie. But maybe you need something more," he said.

I had high hopes when I arrived at my first meeting. The group leader talked about common stages of grief so that we would know what to expect and offered suggestions for getting through each one. I returned for the next session. Gradually I got to know the other parents and hear about the children they had lost.

One night in October, I hesitated before walking into a meeting. I was learning how to survive without Hannah, but maybe I'd gotten all the help I possibly could from the support group. Maybe there was no place I could go to get all the help I needed.


God, only you know the joy and laughter I lost when Hannah died. Help me find those moments of joy again. I got out of the car to go to one last meeting.

As I settled into my usual chair, I tried to remember the last time I'd had a good laugh. The door behind me opened and a couple came in. I had spoken to them occasionally. Their name was Muir, and they didn't live far from Pierce and me. Tonight they brought one of their sons along, a blond-haired boy in a scout uniform.

That blond hair, I thought. It made me recall a couple of blond-haired boys I'd seen not all that long ago. That day in the cemetery—I laughed when those boys couldn't control their crazy little dog, Lucy.

All through the meeting I kept looking over at the boy, remembering the feeling of Lucy's cold nose poking my cheek when she bounced up to give me a kiss, and the sight of her pudgy tummy as Pierce scratched her. I almost laughed all over again.

I approached the Muirs when the meeting was over. They introduced me to their son, whose name was Jess, and we began talking about our children. I told them Hannah was buried at Restland, back in Dallas.

"Matthew is buried there too," Bonnie Muir said. "Near the fence."

"By the baseball pennant?" I asked, remembering Lucy racing around below it.

"That's our flag," her husband replied. "The boys put it up."

The boys? I looked around at Jess. "Were you there on Memorial Day with your sons and your dog?" I asked. "A hyper orange dog?"

"That's Lucy!" Bonnie exclaimed. "And those poor people she ambushed—was that you and your husband? I'm sorry. I hope Lucy didn't disturb you."

"Disturb me?" I said. "She was just what I needed." And now, once again, when I was sure I would never know joy again, God had used that little dog to remind me that I could. And what more was there to live for every day than those moments of God-given joy?

more from beliefnet and our partners