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After Penny was diagnosed with Down syndrome, there were days when I felt as if I was drowning. I could almost feel my lungs filling up with water. I could almost see my murky surroundings, the distorted objects and the light filtering through. I thought I would never come to the surface. Back then, my…

“It takes a village,” has become a cliché. But I really believe it. A wide array of people have been involved in our children’s lives by virtue of circumstance, necessity, and desire. There’s family, of course. My mother, who spends most Thursday nights and Friday mornings caring for her grandchildren. My Aunt Jane, who has…

I’ve written before about how often celebrities seem ignorant about the realities of life with a disability (“What’s Up With Hollywood and the R-Word?”). I’m always eager to hear stories of families with individuals with Down syndrome, but I was particularly delighted to watch this video from Entertainment Tonight of Jamie Foxx with his sister…

We were sitting at dinner a few days ago. William (who is two-years old) had cleaned his plate, which had consisted of cous cous, pears, and hot dogs. I offered him more pear. I should have recognized the problem before it even reached his mouth. This pear came out of the salad Peter and I…
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