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One of the most significant ways that our life with illness affects others is in providing guidance and influence over the next generation of patients, caregivers, and healthcare professionals. When I was first diagnosed with lupus, I didn’t consider this aspect of my “vocation.” I was, as many newly diagnosed people are, focused on my…

Living and coping with a long-term illness often calls for establishing a routine. Meds have to be taken at certain times and with or without food or in certain combinations.  Symptoms need close monitoring. So much sleep. So much exercise. For many of us, illness is a full-time job, and the hours can be overwhelming.…

Most of us who live with chronic illness become very creative when it comes to coping. Perhaps we have an “alter ego,” in the shape of a stuffed teddy bear or other inanimate object, and vent our frustrations on it instead of our loved ones. Or, perhaps we have a favorite color and “trick out”…

Just as churches seem to be placing even greater emphasis on “community,” I and many of my fellow chronic illness and pain sufferers are gearing up and going inside before colder weather and cold and flu season. Indeed, for some of us, the sniffles can turn very ugly very quickly, especially if we are taking…
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