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Good Days...Bad Days With Maureen Pratt
Chronic Illness: Determined Adaptation
By
mpratt
Never say “give up!” That’s one of my mottos for life with lupus. The flare that was stirred up after I had to go off one of my lupus meds has also made me extremely sun- and fluorescent light sensitive, which made it difficult for me to spend much time writing over the past couple…
Chronic Illness: Riding Along
By
mpratt
Several weeks ago, I learned that one of my lupus medications had begun to damage my retinas. I had to stop that medication immediately, but the hope was that I’d have some protection from it for up to a year, so no immediate substitute was needed. The “year” turned out to be two weeks. One…
Chronic Illness: One Size (Often) Does Not Fit All
By
mpratt
Have you ever had someone tell you you “must” do something for your illness, but your doctor has advised against it? Or, had someone say, “I know someone with [your illness], and he/she is really healthy.” [implying, “what’s wrong with you?”] Or had one person say, “I don’t have any problem taking [medication],” when another…
Chronic Illness: Taking Charge
By
mpratt
The first book about chronic illness that I wrote, with rheumatologist David Hallegua, MD, was called “Taking Charge of Lupus: How to Manage the Disease and Make the Most of Your Life.” This was not the book’s original title; I’d titled it, “Lupus in Daily Life.” But, my very wise editor had a better idea,…
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