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I wish I could remember where I heard it (lupus brain fog kicking in here), and if I ever do, I’ll be sure to give credit where it’s due…(and if you know where you heard, it please let me know!), but someone very wise recently said there’s no such thing as “balance” when it comes…

Oh, how we wish we could just throw it away! Pains great and small, banish them to outer space and never take them back again. Yes, how we wish…but then, there’s how we feel and how we live. Pain still is. Not something we can jettison, but something we live with, whether it increases or…

One of the most significant ways that our life with illness affects others is in providing guidance and influence over the next generation of patients, caregivers, and healthcare professionals. When I was first diagnosed with lupus, I didn’t consider this aspect of my “vocation.” I was, as many newly diagnosed people are, focused on my…

Living and coping with a long-term illness often calls for establishing a routine. Meds have to be taken at certain times and with or without food or in certain combinations.  Symptoms need close monitoring. So much sleep. So much exercise. For many of us, illness is a full-time job, and the hours can be overwhelming.…
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