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I was once told by a person in a responsible position in a patient advocacy organization to “be positive, let them know that lupus isn’t all that bad. Don’t be negative.” The message this well-meaning person seemed to want was more akin to “celebrate the survivor,” a phenomenon borrowed from other disease advocacy realms. And…

Lent is over. Advent is a long while away. But, today, I’m going to wear purposeful purple! May is Lupus Awareness Month, and today is Lupus Awareness Day, and the color is purple. Purple is a deep color, sometimes mysteriously so, and lupus is the quintessentially mysterious disease – there’s no cure, there are not…

May is Lupus Awareness Month. For those of us with lupus, it might seem beside-the-point; it’s almost impossible to have lupus and not be aware of it each day, not only in May! I’m not going to go into “what is lupus?” nor am I going to list the statistics of the disease “population,” nor…

Well, I’m nearly 15 years into my diagnosis of lupus, and “they” still don’t know what causes it, really. Sunlight can trigger it in some people, and certain medications can bring on drug-induced lupus. But beyond that, well, it’s pretty much a mysterious “combination” of environmental and “other” factors and, perhaps, heredity. This last factor…
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