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‘Tis the season for doctors’ appointments. Tests. Treadmills. And, oh, the dreaded “fasting bloodwork.” It’s generally fairly exhausting, and I try not to schedule more than one appointment per day (though sometimes, life doesn’t work out this way). Health news aside, my “season” has kicked of in an unexpectedly nice way. The first doctor on…

It’s hard for many people to understand the “whack-a-mole”-like life that is life with lupus. There are some lupies among us with relatively mild disease and for whom some treatment provides longer-term relief. But there are some of us…Well, it’s another thing altogether. Most recently for me, for example, the medication I took for years…

One of the things that can be very damaging to lupus patients is something that many people are already enjoying to the hilt in the early summertime: Basking in the glow and warmth of the sun. Unfortunately for many of us lupies, the rays of the sun (UVB, UVA) can cause the disease to become…

I was once told by a person in a responsible position in a patient advocacy organization to “be positive, let them know that lupus isn’t all that bad. Don’t be negative.” The message this well-meaning person seemed to want was more akin to “celebrate the survivor,” a phenomenon borrowed from other disease advocacy realms. And…
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