What Price Glory?
Laura Hillenbrand, author of 'Seabiscuit,' discusses her Chronic Fatigue Syndrome and how the book affected her life.
And other people. I got to interview more than 100 very elderly people who had actually lived this story. They gave it so much color.
I guess none of the principals were still alive.
They weren't, no. The last one, Marcella Howard [wife of Seabiscuit's owner], died in 1987. Red [Pollard] died in 1981. George [Woolf] [a jockey who rode Seabiscuit when Pollard was recuperating from an accident] had been dead a very long time. But a lot of people who were very closely associated with them were around. Alfred Vanderbilt, who arranged [Seabiscuit's] match race with War Admiral, was a huge help. George Woolf's best friend; Red's sister and children; a lot of Seabiscuit's exercise riders, grooms, stable agents. I was very fortunate. I'm right at the end of living memory with this one.
What would be your advice for people who have been diagnosed with CFS?
It's such an individual journey. But what I would say is, no matter what happens with this illness, I think it is possible to carve out a dignified and productive life. This illness takes everything away from you, and you have to find completely different ways to define what your life will mean to you. But I think it's possible to make a good life. I have been happy in the time that I've been sick. It requires a real redefinition of everything, but I think it is possible to do.
You sound at peace with your situation.
I wouldn't say I'm at peace; some days I really struggle with it. I have times of despair. When my vertigo came back and I lost the ability to write, it was a very difficult thing to adjust to. But I have learned to have very low expectations. I am not somebody who thinks I am entitled to good health or to a good peaceful happy life.
We are fortunate when we have them, but when we don't have them it's not that someone's taking them away from us. It just happens. [This attitude] has made it easier for me to deal with [my illness] than someone else who thinks, "Why me?" I've never thought that. CFS is definitely a very difficult thing to deal with. I go through times of real despair, but I pull myself out of it and keep going. I have no choice.
Are you living independently?
I am not really. I have a boyfriend who's wonderful, who's been with me since before this illness. We've been together more than 14 years. He does a lot of the things I can't do like get the groceries. He does the laundry. I do the cooking. I do some of the cleaning--and I earn the money. He is the most wonderful person in the world and I'm very fortunate in that.
If you're still struggling with CFS, will you continue to write?