What are the Personal Challenges?
What are the personal challenges of living with lupus? Many people with lupus can lead productive lives. However, lupus disease activity can be unpredictable, flaring or subsiding unexpectedly, making planning for the present and future, a challenge. Lifestyle changes, such as avoiding sunlight and infection, and coping with extreme, ongoing fatigue and pain can be very stressful. Also, people with lupus often look perfectly healthy. This can be a blessing, but it can also lead to difficulties obtaining appropriate healthcare, receiving necessary accommodations for disabilities stemming from lupus, or being adequately supported by loved ones.