Beliefnet
This article was excerpted with permission from "The Diving Bell and the Butterfly," published by Random House.

The identity badge pinned to Sandrine's white tunic says "Speech Therapist," but it should read "Guardian Angel." She is the one who set up the communication code without which I would be cut off from the world. But alas! while most of my friends have adopted the system, here at the hospital only Sandrine and a female psychologist use it. So I usually have the skimpiest arsenal of facial expressions, winks, and nods to ask people to shut the door, loosen a faucet, lower the volume on the TV, or fluff up a pillow. I do not succeed every time.

As the weeks go by, this forced solitude has allowed me to acquire a certain stoicism and to realize that the hospital staff are of two kinds: the majority, who would not dream of leaving the room without first attempting to decipher my SOS messages; and the less conscientious minority, who make their getaway pretending not to notice my distress signals. Like that heartless oaf who switched off the Bordeaux-Munich soccer game at halftime, saying, "Good night!" with a finality that left no hope of appeal.

You cannot imagine the acrobatics your tongue mechanically performs in order to produce all the sounds of a language.

Quite apart from the practical drawbacks, this inability to communicate is somewhat wearing. Which explains the gratification I feel twice daily when Sandrine knocks, pokes her small chipmunk face through the door, and at once sends all gloomy thoughts packing. The invisible and eternally imprisoning diving bell seems less oppressive.

Speech therapy is an art that deserves to be more widely known. You cannot imagine the acrobatics your tongue mechanically performs in order to produce all the sounds of a language. Just now I am struggling with the letter l, a pitiful admission for an editor-in-chief who cannot even pronounce the name of his own magazine!

On good days, between coughing fits, I muster enough energy and wind to be able to puff out one or two phonemes. On my birthday, Sandrine managed to get me to pronounce the whole alphabet more or less intelligibly. I could not have had a better present. It was as if those twenty-six letters had been wrenched from the void; my own hoarse voice seemed to emanate from a far-off country. The exhausting exercise left me feeling like a caveman discovering language for the first time.

Sometimes the phone interrupts our work, and I take advantage of Sandrine's presence to be in touch with loved ones, to intercept and catch passing fragments of life, the way you catch a butterfly. My daughter, Celeste, tells me of her adventures with her pony. In five months she will be nine. My father tells me how hard it is to stay on his feet. He is fighting undaunted through his ninety-third year. These two are the outer links of the chain of love that surrounds and protects me.

I often wonder about the effect of these one-way conversations on those at the other end of the line. I am overwhelmed by them. How dearly I would love to be able to respond with something other than silence to these tender calls. I know that some of them find it unbearable. Sweet Florence refuses to speak to me unless I first breathe noisily into the receiver that Sandrine holds glued to my ear. "Are you there, Jean-Do?" she asks anxiously over the air.

And I have to admit that at times I do not know anymore.


Reprinted with permission from "The Diving Bell and the Butterfly," by Jean-Dominique Bauby, Knopf, 1997, Vintage, 1998, divisions of Random House.

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