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At some point, it happens to each of us who has a serious chronic illness. We feel something “off,” and it doesn’t go away. Perhaps it is a dull pain. Or a sharp pang. Or a rash. Or a sudden swelling. And we think, “Oh, no. Not again. Really?!” We might have just been through…

A very good Election Day to you! Have you voted? Will you vote? I hope so! Even if it takes some extra effort, exercising our right to vote is one of the most important activities we can engage in -yes, even if you feel that with your health challenges you are more marginalized than mainstream.…

Chronic illness and pain are serious business, and they take up a good deal of our time. Often, when someone asks what I do I say, “Well, managing my health is much like a full-time job.” It might not be what they want to hear, but it’s true (as you well know, too!). But we…

A woman asked if she could talk to me. I said, “Sure.” The conversation that transpired went something like this: Talk….talk….talk…. “For $500 and 4 weekends, you could cure your lupus yourself.” No…no…no! She was persistent, but I’d heard all of the arguments before. “Your doctor doesn’t know this…” “You’re doing the wrong things…” etc.…
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