Good Days…Bad Days With Maureen Pratt

Good Days…Bad Days With Maureen Pratt

Prayer for Disabled Veterans

posted by mpratt
Image courtesy of Michael Elliott/FreeDigitalPhotos.net

Image courtesy of Michael Elliott/FreeDigitalPhotos.net

Heavenly Father, during this weekend of Memorial Day,

I lift up to you each man and woman who has given service to our nation,

especially those who, because of their sacrifice, have returned disabled.

Be with them in their darkest hours.

When they feel weak, give them your comfort.

When they feel despondent, give them your hope.

When they feel like giving up, give them your strength.

                                                                                                              Wrap your care and love around them and their families as they work to heal.

                                                                                                       Give us wisdom to know what we can do to help them, too.

                                                                                                     And fill our hearts with determination

                                                                                                                 To make their way a little easier, their painful return a way to renewal and joy.

                                                                                                  Amen

                                                                                                          Thank you to all veterans and their families!

Illness: Is God Punishing You?

posted by mpratt
Image Courtesy of dan/FreeDigitalPhotos.net

Image Courtesy of dan/FreeDigitalPhotos.net

Early on in my journey with lupus, a Christian said to me, “You’re not cured because you’re not faithful enough.” When I challenged her on this, she said that she though God was punishing me for my “lack of belief!”

I’ve never believed that illness in our lives was a punishment from God. He loves us, each of us. The proof is Jesus on the cross, Christ risen! But still, some people equate illness with punishment.

I understand this a little; being sick can sure feel as if we’re being pummeled. Moreover, most of us “patients” have wondered, “What did I do to deserve this?” But to think that God, in His ever-merciful presence, is inflicting us with suffering because we need “punishment” is beyond my comprehension. Perhaps our journeys with illness are tests, or ways in which we are meant to come to a greater understanding of God, or come to deeper personal growth. But pure punishment? No.

Truly, no matter how much pain we are enduring, no matter how serious our illness, God wants to bring us comfort, peace, and, yes, blessings of joy. If we cower from God because we believe we’re being punished, we will deprive ourselves of the love that He offers freely and constantly. We’ll also be weaker as we face the challenges that beset our lives – and with illness and pain, we need all the strength we can obtain! Think of it this way, we need God in our corner, not absent from our lives!

Instead of asking God, “Why are you doing this to me?” I try to ask, “What am I to learn from this?” or “What do I need to understand?” or “What do I do with this?”

I want to be closer to God, not more distant.

Blessings for the day,

Maureen

Prayer for an Unknown Person

posted by mpratt
Image Courtesy of Janes Barker/FreeDigitalPhotos.net

Image Courtesy of Janes Barker/FreeDigitalPhotos.net

Dear Heavenly Father,

Yesterday I saw a person who seemed troubled.

We did not exchange a word, but I saw within weary eyes,

a very weak light.

I do not know what this person is enduring,

nor do I have a name or an address.

But, Lord, I know that you know,

And I also know that your love works everywhere,

even in places and people unknown to me.

Please be with the person I saw, Lord.

Bring rest, renewed vitality, and wisdom.

Rekindle the light I saw so that it burns brighter.

And let your peace settle all around, like a cloak of comfort,

Like Your nurturing strength.

Amen

Peace be with you,

Maureen

Lupus: Is Celebrating the Survivors Unrealistic?

posted by mpratt

Maureen Pratt Author PicI was once told by a person in a responsible position in a patient advocacy organization to “be positive, let them know that lupus isn’t all that bad. Don’t be negative.” The message this well-meaning person seemed to want was more akin to “celebrate the survivor,” a phenomenon borrowed from other disease advocacy realms. And the message irritated me.

Certainly, it is possible to “survive” certain serious, even life-threatening, illnesses, and I’m very happy for those who have done this. Whether it is cancer, diabetes, or another health challenge, being able to get beyond it and feel healthy again must be a tremendously joyful sensation, as well as encouraging for those who are still battling that particular illness. Certainly, our society celebrates the survivor, heaping praise and titles such as “Courageous” or “Inspiring” upon them. I join in the celebration when I can, knowing how hard the struggle must have been.

But when it comes to extolling the ease of life with lupus and not explaining how hard it can be,well,  I think this is misleading and probably upsetting to more than just me. First, there is no cure for lupus (except what Our Lord might choose to bring), people with lupus are more likely to “get through” flares (periods when the disease is active) than experience a cure, and the absence of flare does not mean there is the absence of lupus.

Second, lupus is very stealthy. Even at times when we might feel fairly good, “the wolf” can be working inside. Living with lupus requires constant vigilance, regular monitoring by our medical teams, and the understanding that we need to take good care throughout.

Third,  I happen to believe that lupus patients would rather learn much more realistic information that be fed only “positive” things. That way, they can be better equipped to meet the highs and lows of the lupie life – and be stronger for it.

In my talks and writing, I try to talk about the benefits that have come from my journey with lupus. Indeed, there have been many positive things that I’ve gleaned and many blessings are, no doubt, still to come. But I’ll be the first to say it’s not been an easy road, nor a finite one. Each day presents hard challenges, and I know that I am not alone in this.  I do try to focus on good things, uplifting things, loving and lovely things, including the blessings from lupus. But, just as the title of my blog suggests, some days are “good” and some days are “bad.” With good faith, clear eyes, and a determined heart, the “bad days” won’t seem as bad, and the “good days” will be even more blessed.

Peace,

Maureen

 

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