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Good Days…Bad Days With Maureen Pratt
Chronic Pain and Illness Archives

One of the most confounding things for many people when they first hear the term lupus is, “Why is it called ‘lupus?’” The name doesn’t resonate with people today; it doesn’t seem to describe any kind of body part or […]

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May is Lupus Awareness Month, and during this time, I’ll be blogging frequently about aspects of the disease, living with it, and coping with it. I realize my personal experience is unique; each person with lupus has his or her […]

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Never say “give up!” That’s one of my mottos for life with lupus. The flare that was stirred up after I had to go off one of my lupus meds has also made me extremely sun- and fluorescent light sensitive, […]

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Several weeks ago, I learned that one of my lupus medications had begun to damage my retinas. I had to stop that medication immediately, but the hope was that I’d have some protection from it for up to a year, […]

We all have our favorite comfort foods. For some, simple bread or a cup of herbal tea soothes. For others, a hearty, full-course, down home dinner does the trick. I keep chocolate handy, and also, of all things, relish (pardon […]

Throughout healthcare facilities large and small, offices are moving toward (or have already made it to) electronic records. This can be useful when it comes to coordinating care or having ready access to test results or emergency contact information. But, […]

Have you ever had someone tell you you “must” do something for your illness, but your doctor has advised against it? Or, had someone say, “I know someone with [your illness], and he/she is really healthy.” [implying, “what’s wrong with […]

The first book about chronic illness that I wrote, with rheumatologist David Hallegua, MD, was called “Taking Charge of Lupus: How to Manage the Disease and Make the Most of Your Life.” This was not the book’s original title; I’d […]

When you’ve lived through the sharp flares and relative calms of chronic illness, you begin to understand that nothing is guaranteed. As I’ve experienced recently, sometimes the medications we take to keep some symptoms under control suddenly stop working or […]

I am not an expert on depression. Lupus can cause it, or a lupus patient can certainly become depressed. But depression is not one of the conditions from which I have suffered throughout my life with serious illness. However, I […]