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Good Days…Bad Days With Maureen Pratt

Good Days…Bad Days With Maureen Pratt

Lupus: One thing after another

Image courtesy of porbital/FreeDigitalPhotos.net

Image courtesy of porbital/FreeDigitalPhotos.net

It’s hard for many people to understand the “whack-a-mole”-like life that is life with lupus. There are some lupies among us with relatively mild disease and for whom some treatment provides longer-term relief. But there are some of us…Well, it’s another thing altogether.

Most recently for me, for example, the medication I took for years to “control” (I use that term loosely, because my lupus was far from controlled) lupus caused toxicity in my retinas. Off of that med I went, and onto another, which has not staved off lupus activity and, in fact, has stirred up yet more antibodies to yet another organ that had been, apparently, unaffected until now. Sigh. The situation is serious, and I have to go off the second med and onto a very powerful third one, with the anticipation of side effects and a curtailment of many activities.

And does all of this mean that my lupus will, once and for all, be quiet?

Oh, probably not.

Because, as I’ve said before, there is no cure for lupus and it can flare up anywhere in the body seemingly at any time.  Yes, we lupies are all different, with a different set of symptoms and disease course. But for me, it seems like lupus is just one thing after another…As long as the researchers still aren’t sure what causes lupus, I expect that potential cures are still a long while away.

For many reasons, I believe that faith is essential to coping with chronic pain and illness. But there’s nothing like the mysterious, unpredictable disease of lupus to make me know that faith is a must. I can’t control the disease. My doctors don’t have all the answers. Researchers are still…researching. The all-powerful one in this picture is God, and He is my rock of support and safety, not a rock to avoid!

I’ll have to be on the new med for at least a year. It’s going to be a whole new chapter in my fight. But, fight I will, and moreso.

We have to stay strong and stay faithful, my fellow lupies and all who have chronic health conditions. We cannot let “one thing after another” get us down!

Blessings for the day,

Maureen

 

 

  • http://www.maureenpratt.com mpratt

    Hi, Ben. Thank you for responding to my blog post, especially considering the pain you are living with. My prayers are with you – and lots of encouragement to you, too. For, as you know, although the way is really, really difficult, there are others in the “trenches,” too, and we form a mighty loud and powerful prayer-warrior pack! Blessings as you journey, Maureen

  • ben

    i hear ya. i too am a fellow lupie and all my chapters have continued to to get more intense. it took forever for my docs to figure out that i should be tested for a.n.a. after figuring out i was very positive, the meds started. my lupus affects me differently on what seems a daily basis. always in my back in various places, then randomly throughout my body. always in pain every day, the fatigue is what determines if i am down and out for the day or not. every med takes months before they will start to work, if they work at all. (so far, non of mine have). pain meds dont touch the pain most of the time. i have had to stop typing 3 times now just in this short post to re-adjust the way i am sitting due to the intense uncomfort. i manage to keep positive most of the time and having several loved ones encouraging me has helped immensely. if you get down about it, it only makes it worse. keep your head up and read what others have to say, because no matter how bad you are feeling, someone out there is having it just as bad or even worse. thank you for posting your thoughts and feelings, keep sharing so others can be encouraged as well. stay strong even when you are weak.

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