One of the things that can be very damaging to lupus patients is something that many people are already enjoying to the hilt in the early summertime: Basking in the glow and warmth of the sun.
Unfortunately for many of us lupies, the rays of the sun (UVB, UVA) can cause the disease to become active, triggering autoimmune responses in the skin and other, internal organs. Individuals who have lupus should discuss sun exposure and its consequences with their doctors; each lupus patient is, after all, different. But here are some things that I do that have helped me “have a life” while taking precautions to avoid sun exposure:
I’ve adapted many activities to indoors and hours when the sun is not high (or out). Museums, malls, and movie theaters are great places to enjoy with friends – and they’re indoors.
Long sleeves, pants, and wide-brimmed hats are musts when I go outside during the day. I also wear strong sunglasses and sunblock.
Friends and family members understand my need to avoid the sun, and are very accommodating, which is a blessing!
Above all, I don’t dwell on what I cannot do and emphasize, instead, health and doing all that I can to prevent lupus from flaring horribly because of sun exposure.
If you have lupus, I hope you’ll be able to work with your medical team and loved ones to find the summertime balance that’s healthful and right for you. Stay hopeful and you’ll shine!
Blessings for the day,