Good Days…Bad Days With Maureen Pratt

Good Days…Bad Days With Maureen Pratt


Fatigue and Friends

posted by mpratt

Maureen Pratt Author PicMay is Lupus Awareness Month. For those of us with lupus, it might seem beside-the-point; it’s almost impossible to have lupus and not be aware of it each day, not only in May!

I’m not going to go into “what is lupus?” nor am I going to list the statistics of the disease “population,” nor the toll that lupus takes on families, society, and the workplace. There’s plenty of information about that at lupus.org and other websites, as well as info available through our doctors.

But I would like to address one little subject that’s actually a very, very big deal: Fatigue and friends.

One of the symptoms very common to lupus patients is fatigue. It is not the “usual” fatigue that comes from a busy life or a particularly busy day. It is crushing, numbing, and strong. It can really weigh you down, even for the most “mundane” of tasks such as opening your mail. And it can come on suddenly, as if being hit by a tall, pounding wave of fatigue that drags you back out to sea with it.

With such fatigue, it’s no wonder it can be difficult to be a friend of someone who has lupus. I cannot tell you the number of times I’ve had to cancel an outing with friends at the last minute due to sudden fatigue. I also cannot tell you the number of times I’ve cut an outing short because my fatigue was just too profound.

Lupus fatigue does not “just go away,” necessarily, because you take a nap, sleep, or even have a few days at home before venturing out again. Over the past few years, for example, I’ve had a particularly trying time, and I’ve likened my need for rest much like “needing a long runway,” an expansive period of time during which I keep extra activities to a minimum.

With “old” friends, explaining the need for more rest and explaining the fact that lupus can be “very rude” at the most inopportune times, can bring better understanding between the lupie and the friends. With new friends, it might take a bit more explaining, especially that you’d truly/really/absolutely like to do X,Y,Z if only you weren’t so tired. As most of us don’t look sick, it might take new friends more time than the usual to “get” what lupus does and is. But that’s okay. The truly good friends will want to understand, and the result will be positive on all fronts.

Above all, when very fatigued, the lupus patient is well-served to acknowledge his or her state. We don’t do ourselves any favors by pushing and pushing – running ourselves into more problems than not.

Those long days at home, that chunk of time spent resting – these are not “wasted hours,” nor are they completely “down” time. During our “long runways,” we ease up on stress that can aggravate our lupus, and we allow ourselves time to mend, strengthen.

Good friends understand this, too. And when we have them in our lives, no matter our fatigue, we never cease to give thanks! :)

Blessings for the day,

Maureen



Advertisement
Comments Post the First Comment »
post a comment

Comments are closed.



Previous Posts

TLC Tuesday: Feeling De-feet?
Ah, the bliss of putting my feet up! Throughout the day, our feet take a beating. And if we have joint issues "higher up," in the knees, for example, or the hips, thos

posted 1:42:47am Oct. 21, 2014 | read full post »

Food for Thought: Refresh Me, Lord
Many of you know Lisa J. Copen as the Founder of RestMinistries, an online resource for people living with chronic pain and illness of the invisible kind (www.restministries.org). Each year, Lisa sponsors an "Invisible Illness Awareness Week," and I've been honored to participate in it several tim

posted 1:32:33am Oct. 20, 2014 | read full post »

A Praying Spirit: Do you forget, sometimes?
I was looking forward to the day ahead. The sun was shining, my usual aches and pains were at a minimum. I started my morning routine, all happy and uplifted. And then, wham

posted 1:04:40am Oct. 18, 2014 | read full post »

Chronic Illness and Pain: The Gift of Planning Ahead
Next year's birthday cards - done! This year's holiday gifts - done! Yummy chicken soup prepared and in the freezer ahead of cold and flu season - done! I've often written about how hard it is to make firm commitments to things in the future. Chronic illness and pain have a way of interferi

posted 6:59:57pm Oct. 16, 2014 | read full post »

Chronic Illness: Does Ebola Scare You?
It seemed so far away. Until now. As I type this, a second person in Dallas has been diagnosed with ebola, and more are being monitored.  People are talking about it on the news and elsewhere, and asking the question, "How bad can this get?" And those of us with chronic illness, and especially thos

posted 1:40:36am Oct. 15, 2014 | read full post »




Report as Inappropriate

You are reporting this content because it violates the Terms of Service.

All reported content is logged for investigation.