Good Days…Bad Days With Maureen Pratt

Good Days…Bad Days With Maureen Pratt


Fatigue and Friends

posted by mpratt

Maureen Pratt Author PicMay is Lupus Awareness Month. For those of us with lupus, it might seem beside-the-point; it’s almost impossible to have lupus and not be aware of it each day, not only in May!

I’m not going to go into “what is lupus?” nor am I going to list the statistics of the disease “population,” nor the toll that lupus takes on families, society, and the workplace. There’s plenty of information about that at lupus.org and other websites, as well as info available through our doctors.

But I would like to address one little subject that’s actually a very, very big deal: Fatigue and friends.

One of the symptoms very common to lupus patients is fatigue. It is not the “usual” fatigue that comes from a busy life or a particularly busy day. It is crushing, numbing, and strong. It can really weigh you down, even for the most “mundane” of tasks such as opening your mail. And it can come on suddenly, as if being hit by a tall, pounding wave of fatigue that drags you back out to sea with it.

With such fatigue, it’s no wonder it can be difficult to be a friend of someone who has lupus. I cannot tell you the number of times I’ve had to cancel an outing with friends at the last minute due to sudden fatigue. I also cannot tell you the number of times I’ve cut an outing short because my fatigue was just too profound.

Lupus fatigue does not “just go away,” necessarily, because you take a nap, sleep, or even have a few days at home before venturing out again. Over the past few years, for example, I’ve had a particularly trying time, and I’ve likened my need for rest much like “needing a long runway,” an expansive period of time during which I keep extra activities to a minimum.

With “old” friends, explaining the need for more rest and explaining the fact that lupus can be “very rude” at the most inopportune times, can bring better understanding between the lupie and the friends. With new friends, it might take a bit more explaining, especially that you’d truly/really/absolutely like to do X,Y,Z if only you weren’t so tired. As most of us don’t look sick, it might take new friends more time than the usual to “get” what lupus does and is. But that’s okay. The truly good friends will want to understand, and the result will be positive on all fronts.

Above all, when very fatigued, the lupus patient is well-served to acknowledge his or her state. We don’t do ourselves any favors by pushing and pushing – running ourselves into more problems than not.

Those long days at home, that chunk of time spent resting – these are not “wasted hours,” nor are they completely “down” time. During our “long runways,” we ease up on stress that can aggravate our lupus, and we allow ourselves time to mend, strengthen.

Good friends understand this, too. And when we have them in our lives, no matter our fatigue, we never cease to give thanks! :)

Blessings for the day,

Maureen



Advertisement
Comments Post the First Comment »
post a comment

Comments are closed.



Previous Posts

TLC Tuesday: Thaw Out!
For many people, this winter has been brutal. Snow, ice, and, especially, frigid temperatures. Many people have been without power, help to clear mountains of snow, and low on food and other supplies. As we think about spring, we think about warmth - inside and out. And one of the ways we can sta

posted 9:56:52pm Mar. 03, 2015 | read full post »

Food for Thought: What You Hear in Silence
We can learn much, when we cultivate silence. It might seem counter-intuitive; our learning usually takes the form of words or pictures or sounds, tangible things that have size, depth, tone, and space. But beyond all of those things that we can feel is something more profound - it is what you he

posted 9:50:56pm Mar. 02, 2015 | read full post »

A Praying Spirit: Thank You, God!
What if all of your prayers today were of thanksgiving and appreciation? What if, instead of a laundry list of petitions or a few moments spent in distracted longing for relief, w

posted 9:44:21pm Feb. 28, 2015 | read full post »

Chronic Illness and Pain: Letting Your Guard Down
I've had to increase the dosage of the immunosuppressive drug I'm taking for my lupus and anti-retinal antibodies. This makes me even more susceptible to infections - at a time when the flu season is just kicking into high gear! About now, too, I'm getting very weary of fending off potential infe

posted 9:35:17pm Feb. 26, 2015 | read full post »

TLC Tuesday: Award Yourself!
Here in Southern California, the awards season is winding down. For the past few months, a crescendo of award ceremonies, large and small, has built up to last  Sunday night's fe

posted 9:24:25pm Feb. 24, 2015 | read full post »




Report as Inappropriate

You are reporting this content because it violates the Terms of Service.

All reported content is logged for investigation.