Good Days…Bad Days With Maureen Pratt

Good Days…Bad Days With Maureen Pratt


What Season Are You In?

posted by mpratt

pic for website 2012After nearly 15 years with lupus, I’ve come to realize that the journey with the disease moves along much like the seasons of the year. Spring, full of energy and promise and new things, is much like the early days of getting the diagnosis. After a long time, you finally know what is wrong (and are validated that, yes, there is something wrong, even though many people told you it was “all in your head”). Spiritually, you’re full of praise and thanks – God’s finally answered your prayer and you know what’s wrong!

Next comes summer, when the heat is turned up and the days are longer, muggier, and you really begin to feel what life with lupus is about and how drastically it will change your “regular” self and routine. You pray for guidance. Perhaps you pray for better doctors. You pray that the labyrinth of  insurance and other paperwork will get sorted out. You pray your loved ones will understand and stand by you.

With the realization that lupus is chronic, from “summer,” you move into autumn. The days are chillier and you feel it in your joints and bones. The sunlight, which you enjoyed before your diagnosis, is much less present, and you feel less cheery. But, you cannot sit idle. After allowing yourself to rest during the “spring” and “summer” phase, you begin to seek more medical opinions, advice from other lupies, information from books and the Web. You are restless and not so very happy that this chronic illness is, well, chronic. You might pray more that God will heal you, take away the disease, or at least lift much of its burden from your shoulders.

“Winter” is, for me, much like being in the depths of a flare. The pain is worse, the disease activity is ramped up, and the meds are, perhaps, increased. But relief seems a long ways away. If it will ever come. God, at a time like this, might seem far away. It might become more difficult for you to emotionally desire to give thanks or praise Him. You might be too tired to pray at all.

But, then, the flare subsides. Your emotions thaw. You begin to have a little more energy. You can see the early-spring green emerging from the hard-packed, cold ground.

The beauty of thinking in terms of seasons is that we can understand a bit more about the swings we go through as we live years with a chronic illness. Although it might seem difficult to believe at times, there is a cycle to it, and there are ups and downs. And, especially, the more we understand that the lows we feel will not be forever, the more we can rest in the faith that God stays with us throughout and is always ready to comfort us, even in the coldest winter.

Blessings for the day,

Maureen



Advertisement
Comments Post the First Comment »
post a comment

Comments are closed.



Previous Posts

TLC Tuesday: Find What You Love About Yourself
Our bodies change. Our spirits are challenged. Our "regular" lives become almost unrecognizable. When we think nothing more can happen health-wise to bring change, well, something does! When you have a serious chronic illness, there is much about ourselves that we might not like, let alone love.

posted 1:37:13am Sep. 23, 2014 | read full post »

A Praying Spirit: What works?
The longer I've written this blog, the more I've come to understand that I'm not the only one for whom prayer is crucial to coping with illness, pain, and other crises. For man

posted 1:00:41am Sep. 20, 2014 | read full post »

New Podcast Chat with Sean Herriott
Sean Herriott is the former host of Relevant Radio (Catholic Radio)'s morning program, "Morning Air." Over the past several years, I was a regular guest on Sean's program, talking about health and faith an all sorts of topics. He now has his own podcast, "Faith As a Second Language," and I am a gues

posted 4:51:19pm Sep. 18, 2014 | read full post »

Chronic Illness: Too Many Moving Parts? Here's Help!
  This doc wants bloodwork and so does that doc, but the appointments aren't on the same day, so you end up with 2 sticks instead of one. Then, the first doc needs more blood and another test, and a third doc insists you need another test, but at a different facility from the first one, so you end

posted 1:08:20am Sep. 18, 2014 | read full post »

TLC Tuesday: Look for Light
"One more doctor visit" bringing you down? Last week, I had two doc visits in one day, both of which were delayed and difficult. But, at the second one, a "God thing" happened

posted 1:27:45am Sep. 16, 2014 | read full post »




Report as Inappropriate

You are reporting this content because it violates the Terms of Service.

All reported content is logged for investigation.