Good Days…Bad Days With Maureen Pratt

Good Days…Bad Days With Maureen Pratt

Lupus: Getting Involved in Awareness Month

Maureen Pratt Author PicBefore this Lupus Awareness Month gets too far underway, I wanted to highlight a few activities that will be taking place to educate, encourage, and raise funds for research. I realize that budgets can get stretched and energy sapped easily by too much involvement in  volunteerism for any cause, but given the numbers (at least 1.5 million people have lupus in the United States) and need (we’ve only had one new drug to treat this chronic, very serious illness in the past 50+ years), for more of a public face on lupus, we lupies hope that, at least, more people will be aware of what lupus is and how it affects the lives of those who have it and those who care about lupies.


Among the activities this month, the Lupus Foundation of America ( will sponsor several walks in cities both large and small in the United States (you can go to their website for more information). LFA also has a Washington, D.C., advocacy day coming up in June, as well as ongoing support groups and other events throughout the year.

The Alliance for Lupus Research ( will also sponsor “real” walks, as well as a “virtual walk” (a nice accommodation for those of us with extreme sun-sensitivity). Their website also has good information on the disease and the state of current research, so we lupies can be well-equipped to talk with people about these.


The Lupus Research Institute ( has information about their events, as well as the research funding they give. There’s a link on their website to clinical trials, too, so that lupies can potentially be involved in the development of new treatments.

Often, when I speak with  newly diagnosed people with lupus, I hear them express a need to get involved in the cause. Rather than “reinventing the wheel,” these motivated lupies and others can find very worthy, worthwhile activities with organizations that already have a track record of education, advocacy, and research support – and become part of the larger community of lupies and “caring others” who really want to make a difference.

Blessings for the day,


Comments Post the First Comment »
post a comment

Comments are closed.

Previous Posts

Advent 2016: Safe Journey
I realize not all those who ready my blog will observe Advent, the weeks leading up to Christmas. But if you celebration Christmas, then even without Advent, those weeks between Thanksgiving and December 25 can be full of lots of extra ctivity. ...

posted 1:05:05am Nov. 29, 2015 | read full post »

For Those Who Shop
I have a suggestion for shopping this year. It might help shave time off of the decision-making that can be confounding at times, and frustrating at others. That murky, "Will he/she like this?" Years ago, several people told me that you ...

posted 12:57:21am Nov. 27, 2015 | read full post »

Chronic Illness and Pain: Being Thankful
Happy Thanksgiving? It's been a year of amazing blessings, but also a lot of extra pain and uncertainty, not to mention ...

posted 12:46:26am Nov. 25, 2015 | read full post »

Chronic Illness and Pain: Heading Off Holiday Shoppers!
If you live with a chronic illness, or if you have constant pain that interferes with movement or other daily ...

posted 12:34:00am Nov. 24, 2015 | read full post »

Chronic Illness: Just Starting Out - Part Five
One of the hardest parts about a diagnosis of a serious, life-altering chronic illness is just that: it will alter your life. But often we focus on the word "alter" (or harsher pronouncements such as "mess up" or "destroy") and forget that the ...

posted 12:32:22am Nov. 22, 2015 | read full post »


Report as Inappropriate

You are reporting this content because it violates the Terms of Service.

All reported content is logged for investigation.