Good Days…Bad Days With Maureen Pratt

Good Days…Bad Days With Maureen Pratt


Lupus: Getting Involved in Awareness Month

posted by mpratt

Maureen Pratt Author PicBefore this Lupus Awareness Month gets too far underway, I wanted to highlight a few activities that will be taking place to educate, encourage, and raise funds for research. I realize that budgets can get stretched and energy sapped easily by too much involvement in  volunteerism for any cause, but given the numbers (at least 1.5 million people have lupus in the United States) and need (we’ve only had one new drug to treat this chronic, very serious illness in the past 50+ years), for more of a public face on lupus, we lupies hope that, at least, more people will be aware of what lupus is and how it affects the lives of those who have it and those who care about lupies.

Among the activities this month, the Lupus Foundation of America (www.lupus.org) will sponsor several walks in cities both large and small in the United States (you can go to their website for more information). LFA also has a Washington, D.C., advocacy day coming up in June, as well as ongoing support groups and other events throughout the year.

The Alliance for Lupus Research (www.lupusresearch.org) will also sponsor “real” walks, as well as a “virtual walk” (a nice accommodation for those of us with extreme sun-sensitivity). Their website also has good information on the disease and the state of current research, so we lupies can be well-equipped to talk with people about these.

The Lupus Research Institute (www.lupusresearchinstitute.org) has information about their events, as well as the research funding they give. There’s a link on their website to clinical trials, too, so that lupies can potentially be involved in the development of new treatments.

Often, when I speak with  newly diagnosed people with lupus, I hear them express a need to get involved in the cause. Rather than “reinventing the wheel,” these motivated lupies and others can find very worthy, worthwhile activities with organizations that already have a track record of education, advocacy, and research support – and become part of the larger community of lupies and “caring others” who really want to make a difference.

Blessings for the day,

Maureen



Advertisement
Comments Post the First Comment »
post a comment

Comments are closed.



Previous Posts

A Praying Spirit: What works?
The longer I've written this blog, the more I've come to understand that I'm not the only one for whom prayer is crucial to coping with illness, pain, and other crises. For man

posted 1:00:41am Sep. 20, 2014 | read full post »

New Podcast Chat with Sean Herriott
Sean Herriott is the former host of Relevant Radio (Catholic Radio)'s morning program, "Morning Air." Over the past several years, I was a regular guest on Sean's program, talking about health and faith an all sorts of topics. He now has his own podcast, "Faith As a Second Language," and I am a gues

posted 4:51:19pm Sep. 18, 2014 | read full post »

Chronic Illness: Too Many Moving Parts? Here's Help!
  This doc wants bloodwork and so does that doc, but the appointments aren't on the same day, so you end up with 2 sticks instead of one. Then, the first doc needs more blood and another test, and a third doc insists you need another test, but at a different facility from the first one, so you end

posted 1:08:20am Sep. 18, 2014 | read full post »

TLC Tuesday: Look for Light
"One more doctor visit" bringing you down? Last week, I had two doc visits in one day, both of which were delayed and difficult. But, at the second one, a "God thing" happened

posted 1:27:45am Sep. 16, 2014 | read full post »

Chronic Illness: When Everyone Has Their Own Ideas
Don't you just know, one person's rheumatoid arthritis is another's "Oh, it's just aches and pains?" Or, one person's propensity to infection is another's "Don't worry, I only have

posted 6:12:12pm Sep. 14, 2014 | read full post »




Report as Inappropriate

You are reporting this content because it violates the Terms of Service.

All reported content is logged for investigation.