Good Days…Bad Days With Maureen Pratt

Good Days…Bad Days With Maureen Pratt

Lupus: Getting Involved in Awareness Month

Maureen Pratt Author PicBefore this Lupus Awareness Month gets too far underway, I wanted to highlight a few activities that will be taking place to educate, encourage, and raise funds for research. I realize that budgets can get stretched and energy sapped easily by too much involvement in  volunteerism for any cause, but given the numbers (at least 1.5 million people have lupus in the United States) and need (we’ve only had one new drug to treat this chronic, very serious illness in the past 50+ years), for more of a public face on lupus, we lupies hope that, at least, more people will be aware of what lupus is and how it affects the lives of those who have it and those who care about lupies.


Among the activities this month, the Lupus Foundation of America ( will sponsor several walks in cities both large and small in the United States (you can go to their website for more information). LFA also has a Washington, D.C., advocacy day coming up in June, as well as ongoing support groups and other events throughout the year.

The Alliance for Lupus Research ( will also sponsor “real” walks, as well as a “virtual walk” (a nice accommodation for those of us with extreme sun-sensitivity). Their website also has good information on the disease and the state of current research, so we lupies can be well-equipped to talk with people about these.


The Lupus Research Institute ( has information about their events, as well as the research funding they give. There’s a link on their website to clinical trials, too, so that lupies can potentially be involved in the development of new treatments.

Often, when I speak with  newly diagnosed people with lupus, I hear them express a need to get involved in the cause. Rather than “reinventing the wheel,” these motivated lupies and others can find very worthy, worthwhile activities with organizations that already have a track record of education, advocacy, and research support – and become part of the larger community of lupies and “caring others” who really want to make a difference.

Blessings for the day,


Comments Post the First Comment »
post a comment

Comments are closed.

Previous Posts

Mass of Canonization: Religious Freedom and Tolerance
Today, September 23, 2015, Pope Francis will celebrate the first Mass of Canonization to take place in North Ameria. The soon-to-be Saint is Junipero Serra, an 18th century Franciscan missionary who founded the first 9 of the California ...

posted 1:13:08am Sep. 23, 2015 | read full post »

Prayer and Pope Francis
As I type this, Pope Francis is about to arrive at Joint Base Andrews. There is the usual activity as people gather to greet the Pontiff - some are finding their seats, photographers are checking their camera angles and light (some clouds in the ...

posted 7:48:02pm Sep. 22, 2015 | read full post »

Pope Francis in Washington, D.C.: A Personal Welcome!
  One of the first things that strikes me about Washington DC this week is the personal way the City is preparing to greet Pope Francis. The picture with this blog is of the banner hanging on the Basilica of the National Shrine, where ...

posted 2:28:31am Sep. 22, 2015 | read full post »

Pope Francis: A Powerful MIssion
Already, I a amazed at the energy with which Pope Francis is moving through his arduous Visit. I watched much of the coverage from Cuba, and kept wondering, "How does he maintain his natural, loving, joy-filled smile? He has to be beyond ...

posted 1:14:07am Sep. 22, 2015 | read full post »

Chronic Illness: A Change of Season
As we age with chronic illness, we gradually realize that our bodies and often our spirits enter a prolonged change of ...

posted 8:12:46pm Sep. 21, 2015 | read full post »


Report as Inappropriate

You are reporting this content because it violates the Terms of Service.

All reported content is logged for investigation.