Good Days…Bad Days With Maureen Pratt

Good Days…Bad Days With Maureen Pratt


Chronic Illness: Riding Along

posted by mpratt

Maureen Pratt Author PicSeveral weeks ago, I learned that one of my lupus medications had begun to damage my retinas. I had to stop that medication immediately, but the hope was that I’d have some protection from it for up to a year, so no immediate substitute was needed.

The “year” turned out to be two weeks. One evening, nothing. The next morning, I was in full flare and more – my sun- and fluorescent-light sensitivity have returned in a major way, and eveything else is following suit. Medication options are, unfortunately, quite limited. I’m waiting for insurance authorization for a med that must be compounded. One of the side effects is that it might turn my skin (all of it) yellow (!), and of course there are other side effects, too, that might occur. It’s much like starting out all over again with the disease – all the same symptoms, questions, frustrations, and glimpses of the divine through it all.

In life with chronic illness, sometimes you just feel like you’re riding along and sometimes you feel like your along for the ride. At either time, the key is to develop a sense of balance that enables you to stay on the proverbial horse through trots, gallops, jumps, and balks. Yes, with lupus, there are a lot of balks!

Blessings for the day,

Maureen

 

 



Advertisement
Comments Post the First Comment »
post a comment

Comments are closed.



Previous Posts

Chronic Pain: Lost and Found
Somewhere, amid the pain and the frustration we feel over lost health and today's health trials, there are bright, uplifting memories we've lost track of, times when life was easier or days when we heard and enjoyed laughter, did good things and had good times. There are people and places that broug

posted 1:10:19am Aug. 30, 2014 | read full post »

Chronic Illness: Embracing smooth sailing!
Like the calm before the storm, or the comfort before the next flare, the period of relatively "smooth sailing" can be a bit nerve-wracking. We know that "chronic" means ongoing, and have had flares rise up unexpectedly in the past. So, a period of quiet, when the illness is not so active, might mak

posted 8:03:03pm Aug. 28, 2014 | read full post »

TLC Tuesday: What if you missed Tuesday?
If you have a chronic illness or live with serious pain, you know that sometimes, you "miss" a day or two in the week. It's too hard to get out of bed. You are going through medical tests, and the outside world seems to disappear into the technicality of prep and procedure. You're brain-fogged, and

posted 1:56:46am Aug. 26, 2014 | read full post »

Chronic Illness: If You Were Not You
One of the techniques I try to use whenever I'm in a quandry over something regarding my health is to ask, "What if I were not me? What if I were my mother? My sister? My friend? What would I say? Do? Pray over?" This helps me take the sometimes-frustrated or "at sea" me out of the conversation a

posted 1:47:51am Aug. 23, 2014 | read full post »

Prayer for Grace-full Aging
Whether your day has passed or is coming up, we all will age one more year this year and onward. We cannot turn back the clock, but we can turn on grace as we move ahead. Her

posted 1:30:27am Aug. 21, 2014 | read full post »




Report as Inappropriate

You are reporting this content because it violates the Terms of Service.

All reported content is logged for investigation.