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Chronic Pain & RSD
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Messages: 5 - 8 (11 total)
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sepete
6/27/2006 5:46 PM
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5 out of 11 |
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gianardil
That was some accident. I find that writing about the pain and frustration can also be a help. I hope writing about it didn't bring up bad memories, but allowed you to get out some of the bitterness you must have over how the accident has left you. As far as taking medications, you have to take as much as whatever helps you the most. Sometimes it takes a combination of drugs, and most times it's trial and error before you find a combo that works. This is where a pain specialist can come in handy. They are more willing to try many different things, and combinations of drugs.
God Bless
Please feel free to write and vent any time you want. If you're just writting to vent, just add a "no reply necessary" at the end of your post. We've all been there.
Sue
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PainFighterandBadPatient
7/1/2006 11:12 PM
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6 out of 11 |
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To you, and all RSD patients:
Hello! I just joined this group because your entry touched such a chord with me and my experiences with RSD. I have never joined a discussion or chat room in my life.
Back in 1990, I sprained my left ankle very badly. It was cat up to my thigh, and was extremely painful! As time went on, the cast was removed and an airsplint was applied for a long period of time. As you may know, the healing process was held back by some mysterious force. No one had an explaination. Many therapy sessions ensued, with no reduction of swelling, skin tone or PAIN. In fact, the pain was so bad that any touch to or with the foot was painful enough to cause me to pass out. I got a quick education as to what pain really feels like!
I ended up being told I would not walk again, that the pain would stay with me as I was suffering from Reflex Sympathetic Dystrophy (RSD.) I did not walk for 5 years! My life was turned upside down! How could a sprained ankle turn into such a life altering event?
My circulation began to slow in the leg, and in fact was affecting both legs now! I went to a well recommended surgeon at Newton Wellesly Hospital in MA, and soon was in the hospital to have a Lumbar Smypathectomy done. This corrected the circulation wounderfully, however the greatly improved blood flow caused the permanently "switched on" pain receptors to fire with horrible frequency! I was able to walk for about 3 days, but as the anesthesia and pain meds wore off, the pain became much worse. (Impssible, I had thought!)
We began to concider MS to be a possible complication, but this was proved invalid. I spent the next two months, alone, in a different state from everyone I knew. After one month at this hospital, I was deemed to weak to be allowed to go home. I was transfered by ambulance to a Rehab Hospital north of Boston, even further away from home! I went though thier month long program, and was released to my home, still in horrid pain, with the comment that I "Just didn't get it," because the pain was still keeping me an immoble patient. Back in my home state, I went through several other programs, several doctors, and lots of pain Meds.
Through all of this, I refused to accept my supposed life long handicap! I swore to my caregivers that they would someday get a picture of me after I climbed a mountain! They shook thier heads and said that I must accept the inevitable. (The picture was sent later in the 1990's from the top of a mountain I had climbed in New Hampshire!!!)
To skip ahead a few years, I finally went to see a Physiatrist. (Doctor of Rehabilitation.) After being with him for most of a year, he told me he was doing some reading and came across a case of phantom Limb Pain, and a cure that had worked in quit a few patients. I was asked if I wanted to try this on my RSD. To our knowledge, I was the first to try this possible cure. I began taking an anti-arithmis drug known as Mexilatine (Mexitil.) After three months of ever increasing dosages, I Was Beginning to Walk Again! The magic cure had been found! The Bad Patient who would not accept the word of his doctors, (Can you imagine that?), was 95% cured.
To sum up this long story, ask about this medicine. It has worked for many others with our problem! Also, no matter how dark the situation may be;
*DON'T GIVE UP, DON'T GIVE IN, DON'T SETTLE FOR LESS! I am not one of those Superman type patients. Just someone who refused delivery on an unacceptable condition. Not everyone can be cured, but Attitude is everything! Remember, Doctors are still practicing, but patients live the Real Deal! Find an active support group in your area. There are more RSD sufferers than you think. If your doctor is frustrated, or out of ideas, second opinions are acceptable. Don't worry about hurting egos, You are the one who hurts! You Come First!
I wish you the best of luck! Please remember that you are a person, not a patient. There is a world out there, past the pain you must endure....
Love,
Pain Fighter and Bad Patient!
Arnie Geller
arniemarkg@cox.net
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PainFighterandBadPatient
7/1/2006 11:16 PM
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7 out of 11 |
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To you, and all RSD patients:
Hello! I just joined this group because an entry touched such a chord with me and my experiences with RSD. I have never joined a discussion or chat room in my life.
Back in 1990, I sprained my left ankle very badly. It was cat up to my thigh, and was extremely painful! As time went on, the cast was removed and an airsplint was applied for a long period of time. As you may know, the healing process was held back by some mysterious force. No one had an explaination. Many therapy sessions ensued, with no reduction of swelling, skin tone or PAIN. In fact, the pain was so bad that any touch to or with the foot was painful enough to cause me to pass out. I got a quick education as to what pain really feels like!
I ended up being told I would not walk again, that the pain would stay with me as I was suffering from Reflex Sympathetic Dystrophy (RSD.) I did not walk for 5 years! My life was turned upside down! How could a sprained ankle turn into such a life altering event?
My circulation began to slow in the leg, and in fact was affecting both legs now! I went to a well recommended surgeon at Newton Wellesly Hospital in MA, and soon was in the hospital to have a Lumbar Smypathectomy done. This corrected the circulation wounderfully, however the greatly improved blood flow caused the permanently "switched on" pain receptors to fire with horrible frequency! I was able to walk for about 3 days, but as the anesthesia and pain meds wore off, the pain became much worse. (Impssible, I had thought!)
We began to concider MS to be a possible complication, but this was proved invalid. I spent the next two months, alone, in a different state from everyone I knew. After one month at this hospital, I was deemed to weak to be allowed to go home. I was transfered by ambulance to a Rehab Hospital north of Boston, even further away from home! I went though thier month long program, and was released to my home, still in horrid pain, with the comment that I "Just didn't get it," because the pain was still keeping me an immoble patient. Back in my home state, I went through several other programs, several doctors, and lots of pain Meds.
Through all of this, I refused to accept my supposed life long handicap! I swore to my caregivers that they would someday get a picture of me after I climbed a mountain! They shook thier heads and said that I must accept the inevitable. (The picture was sent later in the 1990's from the top of a mountain I had climbed in New Hampshire!!!)
To skip ahead a few years, I finally went to see a Physiatrist. (Doctor of Rehabilitation.) After being with him for most of a year, he told me he was doing some reading and came across a case of phantom Limb Pain, and a cure that had worked in quit a few patients. I was asked if I wanted to try this on my RSD. To our knowledge, I was the first to try this possible cure. I began taking an anti-arithmis drug known as Mexilatine (Mexitil.) After three months of ever increasing dosages, I Was Beginning to Walk Again! The magic cure had been found! The Bad Patient who would not accept the word of his doctors, (Can you imagine that?), was 95% cured.
To sum up this long story, ask about this medicine. It has worked for many others with our problem! Also, no matter how dark the situation may be;
*DON'T GIVE UP, DON'T GIVE IN, DON'T SETTLE FOR LESS! I am not one of those Superman type patients. Just someone who refused delivery on an unacceptable condition. Not everyone can be cured, but Attitude is everything! Remember, Doctors are still practicing, but patients live the Real Deal! Find an active support group in your area. There are more RSD sufferers than you think. If your doctor is frustrated, or out of ideas, second opinions are acceptable. Don't worry about hurting egos, You are the one who hurts! You Come First!
I wish you the best of luck! Please remember that you are a person, not a patient. There is a world out there, past the pain you must endure....
Love,
Pain Fighter and Bad Patient!
Arnie Geller
arniemarkg@cox.net
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Godzgift
7/4/2006 4:30 PM
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8 out of 11 |
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I feel so bad whenever I read about your pain on this site. I wish that you guys would look into Noni juice. it is almost miraculous.
email me if you cannot find any or any information
bnhizwill@aol.com
Thanks,
Angela
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