Choices for the Dying

Dying, like old age, is not for sissies. Neither is it for the unprepared. Accidents, serious illness, or sudden injury can and do strike without warning, bringing people of all ages to the edge of death every day.

As the case of Terri Schiavo makes painfully clear, when a health crisis strikes, families and physicians are faced with agonizing choices about the treatment and ongoing care of an individual who can no longer share in the decision-making. While we all want to believe the person at our bedside will be someone who knows what we want and loves us enough to honor our wishes, in the emotional pressure cooker of a health crisis, even the most loving families can disagree. Physicians may offer conflicting advice; and government may soon take a role as well. For the sake of your family--and your own peace of mind--the way to insure you have the deciding voice in your own critical care is to leave clear, specific guidelines.

The key to individual choice at the end of life in situations of medical extremity is one document: The Advance Health Care Directive, outlining what you want for yourself. Advance directives can be as simple or as detailed as you choose. Their primary segments include designation of someone to make healthcare decisions for you if you should become incapacitated and an outline of your instructions for that care.

First, you designate an agent or healthcare proxy, formally called "Power of Attorney for Health Care." Most of us know deep down who we would most trust to direct our care if we could not. If you who want someone other than an immediate family member to manage your care, or if you know family members might disagree, formally naming your choice as healthcare proxy is a crucial element in allowing them to speak for you.

Secondly, in your Advance Directive you outline your wishes about life-sustaining medical treatments such as use of drugs and blood products, dialysis, respirators and surgeries. This is the portion commonly referred to as a "Living Will." You may also state your wishes about prolonging life with food and drink, and about levels of pain control. It's the absence of such a document that has caused years of family anguish in the case of Terri Schiavo and caused similar anguish a few years ago in the case of Nancy Cruzan.

Do you need an attorney to draw up your own advance directive? Not necessarily. Once the forms, available from hospitals, state and local medical associations and online are witnessed and, if required in your state, notarized, they are enforceable.

What you do need is simply to talk. Talk to your doctor, your family, clergy or spiritual advisors, close friends. Admittedly that's not an easy assignment. Most of us share a hesitancy to discuss dying-- our own or anyone else's-- until it's absolutely necessary. But that moment of necessity can come too late. Friends and family brought into such discussions early on are often grateful for the chance to share thoughts and preferences, and may even be encouraged to consider their own end-of-life planning.

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